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Hope 4 M.E. & Fibromyalgia Northern Ireland

is a registered charity run by patients and volunteers. We receive no core government funding and rely entirely on small grants and voluntary donations to operate.  

The support group was set up by Joan McParland in 2011 and gained charitable status in 2014.

Activities:

  • Monthly support meetings on the 1st Tuesday of each month in the Mourne Country Hotel, Newry, at 7pm with regular guest speakers. (Meetings continuing via Zoom since March 2020)

 

As our membership spans all of Northern Ireland, Ireland and the U.K., to facilitate patients who are unable to make monthly meetings, we livestream specialist speakers’ lectures, out to the special Members Only FB Page.

  • Annual Conferences with international researchers and leading experts in ME & Fibro.

  • Lobbying for Specialist Biomedical Care in N.Ireland. So that best physiological evidence is used to inform care decisions.

  • Fundraising to support above & towards biomedical research

  • We provide a number of ways for patients to avail of support and fellowship via our closed FaceBook Pages, everyone is welcome to join and connect to ask questions and discuss matters on just about anything relating to managing our illnesses and lifestyle. 

We also share the latest M.E. and Fibromyalgia research, information, expert opinion, events and news from around the world, on our Facebook Announcements Page. 

Link: https://www.facebook.com/Hope4MEFibro/ 

 

Since the lockdown, we are hosting our exclusive monthly meetings with specialist speakers, for members via Zoom. Non-members of the charity can join in monthly meetings for a small fee. 

 

Website: https://hope4mefibro.org/

FB: https://www.facebook.com/Hope4MEFibro/ 

Twitter: @hope4mefibroni 

Link to join: https://www.facebook.com/groups/newryandmourne.me.fms/